Due to physical illness I am required to find a new balance in my life. Cushing's Disease has stolen much, but I plan to win. Let the games begin...
Monday, June 3, 2013
Second Opinion
Someone posted this to a Cushing's site the other day. It explains a little the difficulty and length of time getting a diagnosis, some of the effects of Cushing's, and a little about surgery and recovery. I LOVE that this Endocrinologist is wise enough to use the term "Remission" for Cushing's patients. I've often wondered if the statistics give for "cure" rates were similar to that of Cancer --meaning 5 years post-op, and it they are actually accurate. Regardless, 40-60% aren't fabulous statistics. No wonder many are turning to a bilateral adrenalectomy after a recurrence of Cushing's. I would certainly rather replace adrenal hormones for life than to be one that has to replace all the pituitary hormones for life due to too much pituitary damage from surgery (or repeat surgeries, or even pituitary removal). Still, I wonder what the incidence of adrenal rest tissue is... May have to look into that one at some point, not that it applies to my situation yet.
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