Saturday, April 12, 2014

What it feels like to have Cushing's

I figure this is a good "object lesson" idea for helping people understand more than just the loss of energy we are dealing with (ie, spoon theory). This barely scratches the surface, too:

High blood pressure, diabetes, premature aging, anxiety, chronic pain, depression, loss of circadian rhythm (ie, awake all night, asleep all day), bipolar disorder, central obesity, osteoporosis, hypothyroidism, anemia, electrolyte imbalance, easy bruising, chronic fatigue syndrome, loss of sex drive, arthritis, sleep apnea, acne, insulin resistance, acanthosis nigricans, speech problems (poor word recall, stutter, etc), memory loss, PCOS, eczema, OCD, thinning skin, vitamin D deficiency, immune suppression, edema, hair loss, hirsutism, severe proximal myopathy, adrenal insufficiency (in a low), hypokalemia, eye myopathy, sweating profusely, poor wound healing, moon facies, exercise intolerance, infertility, hypopituitarism, etc...

If you know how hard any of these are individually on a person, perhaps this list of common illnesses associated with Cushing's Disease will help give a glimpse into the struggles "Cushies" live with on a daily basis. We don't want sympathy but we would like those around us to be more understanding of our struggles and limitations.

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